Wellcome criticised for pulling the plug on patient data initiative

Decision branded ‘wrong thing at the wrong time’, as controversy over GP records database persists

Health policy experts have criticised a decision by the Wellcome Trust to pull the plug on an initiative to improve transparency and public understanding around the use of patient data.

Understanding Patient Data produces resources and guidance on how to talk about health and care data. It carries out research on people’s views about how their data is used and provides advice to policymakers.